primary LE ל-2 ילדות מחו"ל
דיון מתוך פורום לימפדמה (בצקת למפטית)
לג'יל שלום רב, האם תוכלי להביע דעתך ולייעץ במקרה של הסימנים הצהובים ובכלל לגבי הבעייה המתוארת במייל המצ"ב של ידידות שלי מחו"ל שלילדות שלהן יש לימפאדמה (כנראה PRIMARY LYMPHEDEMA). אודה לך, בברכה, לוחמת הלימפה Sent: Saturday, August 27, 2005 9:00 PM Re: Cellulitis--Backpacks for school > Thank you Caroline, again, for the help! After Ryann had her > lymphscintigraphy her skin turned yellow with the infection AND now I > have been noticing yellow places on her foot again. I am not sure if > they are the same as last time. There aren't any blisters, just > yellow places. She said that they don't particularly hurt, but the > areas around them hurt. I thought perhaps they were bruises, but > then wouldn't the yellow places hurt? OR even if it was an infection? > Sometimes I think I have started to learn AND understand lymphedema, > AND then it does something strange AND I feel like I am starting all > over again! > > There don't appear to be any cuts anywhere on her leg OR foot, > although she did have two areas that have recently healed. She did > have some leakage from the base of her toenail. Other than that, she > seems okay. Hmmmmmm. Guess it may be one of those wait AND see > situations! > > Ryann has a bag that slings over her shoulder AND she wears to one > side. I thought this might be better than a regular backpack. She > didn't want one that rolls as the younger children often use those. > Of course, she may not have a choice AND will just have to make do. > She also wants to keep something she can ride her bike easily with.
Yellow areas on the skin in primary lymphedema patients could be chylous reflux - these have a blister like appearance. The blister fills with a milky fluid. Rupture of these blisters causes a milky leakage AND the possibility of infection as skin bacteria now have a port of entry. Lymphedema which includes chylous reflux needs to be diagnosed AND treated by a lymphology specialist as it involves the intestine. A dietician also needs to be consulted regarding the best diet for Ryann. However, if these areas are not blisters, consultation with a dermatologist may help to provide an answer regarding necessity for intervention OR not. . Regarding the school bag - my preference would be wheels, but Ryann also needs to feel comfortable with her peers AND I would be flexible as long as the bag is not worsening her lymphedema in any way. Jill
רוב תודות לך, ג'יל, עבור עצתך המקצועית שהועברה לחו"ל באופן מיידי. בשם הורי הילדות, שלוחה לך ברכתם האישית. כה לחי ! לוחמת הלימפה
מנהלי פורום לימפדמה (בצקת למפטית)
